Tuesday, 6 December 2011

All's Well That Ends Well


I wanted to move back to Northampton under my own steam. Sadly, the move would eventually be forced.

Back when I was 16, if you remember, my mother kicked me out and had discussed the subject openly with my brother but hadn't even hinted anything to me. Well this repeated itself when she informed me that she had been planning to move down to the Northampton area herself for a while. She had actually started the ball rolling.


You see, the brother had procreated. She was a grandmother and wanted to see him grow up. Of course all of the plans made didn't involve me. When she moved, I'd be out on my ear. I had had to push my own moving plans into action.

My medication almost certainly stopped me from reacting angrily to this news. I think that's why my mother had left it until then to tell me. Our relationship was improving as I was getting the help I needed and was becoming an easier person to be around.

Up until that point, the premise had been I wouldn't move until I was ready to stand on my own two feet. A bit of anxiety crept in though. I might not have a choice.

Luckily for me, I was in a much better position to find housing in Northampton. I had my new family and some old friends to help get me set up. I knew I could count on their support, but I wanted to make sure I could do it by myself. I was able to quite quickly secure some temporary digs for when I did move and it looked quite plausible that I could be down there before the Xmas of 2011.

I also looked at getting on the council house list down there. As it stands, living outside of the area, I'd be on band D. That would be a 2 year wait and as my mother had already been on the same list for 6 months or so, she had a head start on me and that wasn't going to work.

However, if I was to move into temporary digs, I'd be technically homeless and living in the area. I'd be moved up to band B. That had an average wait of 1 year. I'd already be in the town aswell, so I wouldn't have to worry about actually becoming homeless and living on the streets.

One thing I had to think about was how I'd be able to not only fund a move, but to be able to pay rent and bills once I got there. Now I'd never received any benefits before. Even through all of those jobless months and years, I'd never signed on. It just didn't feel right. It was rare that I was actually seeking work. So to get job seekers allowance felt like fraud to me. I didn't want to be one of those people.

There was another option. That was to go down the medical route. The Citizens Advice bureau had advised me that I may be entitled to Employment and Support Allowance, which had replaced incapacity benefit. It meant that if I was to move while on that, I'd have most of my bills paid for me and although I wouldn't be standing on my own two feet, I'd be down there and the recovery could really begin.

I hadn't really seen anyone from the NHS for a few months. Most of my rehab was complete. I did have to see Dr Wrong again though and I had told him of my worries about the backwards steps I had taken. The relapse. His response still angers me to this day; “Are you sure that's not your doing?”

When I told him I had changed my diet and was now buying my own food, albeit with my mothers money, he angered me even more; “Come on Daniel, you're 27 years old now!” I struggled to hold myself back from decking him, I really did. He was patronising and he was condescending. I sought a second opinion a week later and that doctor had no problems giving me a second set of medication to take. That was it, I'd avoid Dr Wrong at all costs now.

I applied for the ESA at the beginning of August 2011. The application was done over the phone. I thought it was easy. It'd soon get very complicated. I had asked Citizens Advice to help but they were less than useless. The phone line was always down and they couldn't give me an appointment for another 5 weeks. That wasn't good enough, so I did it myself.

The whole system is wrong in my eyes. But it's that way because of the people who have abused or fraudulently claimed for benefits in the past. It's those peoples fault that getting the benefits you deserve is so difficult. Even the phone numbers are backwards. It's a freephone number to claim, but if your claim is accepted and you need information from them, it costs you 25 p a minute. You're guaranteed to be on hold for 10 minutes aswell.

A few days after making the phone claim, I received a letter saying it had been accepted. Bonus, quick, easy and painless. Oh no, it wasn't that easy. In this letter they said I needed to send a doctors note for the period of August. Off I trot to the doctors to get one and I send it off. A week later I've heard nothing and two expensive phone calls gave me any useful information.

The third expensive phone call actually got some answers. The claim, although accepted, had been suspended because they didn't have a sicknote to cover the previous three months. Now I had back dated the claim to May. I could have backdated it to the previous August, I'm glad I didn't, I would probably have had to walk to the benefits centre in Bolton to show them my left toe for them to accept that.

Still, I waited. Then waited some more and despite numerous promises of a call back from them, it was always me who had to ring them. I'd go through the menu, then sit on hold for 10 minutes, then have to go through all the security questions, then have to tell them the situation, then have to wait for them to find the notes of my claim. If it wasn't for my medication, I'd have given up very quickly. I stood fast though and my patience was eventually rewarded with yet another acceptance letter, in fact two, on the same day, detailing that my claim from August and the back dated money would be paid.

There was very little information sent out to me though and there was a hell of a lot that I had to either figure out for myself or spend another 10 minutes on hold to them at 25p a minute finding out.

I'd have a work capability assessment at some point over the next x weeks. I say x, because the goalposts moved almost daily. I think the latest is 13 weeks. But 13 weeks from the back dated claim date? 13 weeks from the actual claim date, 13 weeks from the day I first got my money? It may as well have been 13 weeks after the DFS sale ended. They told me nothing though, never kept me in the loop and never hinted as to when it would come up.

Through all of this, I had to keep supplying them with sicknotes. They never had any issue sending out letters to remind me of that. They never sent me any useful information though.

As I write this, I'm 3 days away from that work capability assessment. As I write this, it's December and I applied for the ESA 4 months ago exactly. No wonder people fall into a hole and try and stay on the benefits. They have to wait so long for anything to happen, they have started to rely on them. The system needs an overhaul.

You're almost caught up now. I'm physically in the best shape I've ever been. Cycling, exercising and a more active life have made sure of that. I'm in a better shape than I have in nearly 20 years and I'm on the verge of starting my life again.

I havn't got a set date for moving yet. But it will be this side of the 2012 Olympics in London. I won't be going down there on benefits either. When the time does come, all I'll need to do is find a full time job in Northampton. As soon as that is found, I can move almost straight away.

I went for a second opinion regarding that lump I had found a year ago. I was referred to another surgery where I was to have an ultrasound scan. It would come back negative for any serious problems. I didn't have cancer of the Tsurav Ganguly's It was a relief to say the least.

The same day as that scan, my dog Prince fell ill. It turns out he has heart disease and fluid had built up in his lungs and on his abdomen. He's actually lay here on the sofa with me as I type this, getting some much needed rest. He's on the mend now though after a trip to the vets and some medication.

I don't drink anymore. I've quit smoking and I have a very healthy diet. My fellow mental Lynsdey and I are best friends and we go through the good and bad days together. These good days outweigh the bad days by about 50 to 1.

It's been a long journey for me. My blogs have probably filled you all in on about 10% of my life. There's a lot more and who knows, I may write a book one day. After seeing my blog get 1,000 hits in the first 7 days, I might even make some money out of it.

Don't worry though, this isn't the end of my story, or the end of my blog. I'll be delving deeper into certain aspects of my life over the coming weeks and months and I'll be doing as much as I can to raise awareness of mental illness. For those who have read my story, I thank you. The feedback has been tremendous so far and a fair few people have even found they can open up to me about their own struggles.

I hope these blog posts will make a difference in someone's life. I don't want credit for it. I'm not doing this for myself. If this can change, or even save a single life. My 17 years of pain will have been worth it.

Remember, the help is there. Don't be afraid to reach out and take it. Your pain and suffering can end, without the need to end it yourself.

Finally, I'd like to offer my thanks to Gary Speed. His tragic and untimely death a week ago inspired me to tell my story. His death has inspired many to open up about their own difficulties and we can all learn from what happened to him and make sure we don't suffer the same tragic end that he did.

RIP Speedo. You will always be a hero to me, as a footballer and as a human being

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